Friday 15 April 2011

pmp survivor for 10 years

My name is Pauline and I think I must be one of the longest survivors of PMP. I was rushed into QMC in Nottingham (the hospital where I worked in the department of Haematology) in August 1999 with suspected appendicitis which proved to be a tumour on my appendix. My peritoneal cavity was filled with a jelly-like substance which my consultant had never seen before. Everyone was perplexed and didn't really know what to do. They removed the tumour and closed me up. I had to go back to have a right hemicolectomy, but to complicate matters even more it was impossible to perform conventional tracheal intubation under general anaesthesia, necessitating cancellation of the surgery. The surgery was done a month later and a brilliant anaesthetist successfully intubated me be using an awake fibre optic technique. The operation was followed by six months of chemotherapy. The PMP returned and in February 2002 I went to Basingstoke where I had the pioneering surgery to remove the tumour, and any other organs affected.There was no web site about PMP no leaflets available at this time, no specialist nurse as there is now, I felt very frightened and alone.I have annual CT scans and blood tests and have never felt better. I think this web site is fantastic, PMP sufferers need not feel alone, there is hope and treatment out there, and people do survive, I understand there is another hospital which also does this operation.I will be forever grateful to Brendan Moran and his team at Basingstoke, they have given me my life back.